Gordon Aikman: Dying has taught me how to live

In June I wrote in Scotland on Sunday about my shock diagnosis of Motor Neurone Disease. MND is a progressive and debilitating condition that attacks the nerves and spinal cord. It is systematically weakening every muscle in my body and this will continue until I am paralysed. But my brain and thinking is likely to remain unaffected.

My aim was to raise what I could to help find a cure. I set up a JustGiving page, but could never have predicted what happened next. In one day: £20,000. My head was in a whirl. Something amazing was happening. And people – strangers – were helping. I was dying at the age of 29, but I was fighting back.

Soon friends had formed a campaign team around my kitchen table. Since then, there have been speeches, leaflets, awards, the Ice Bucket Challenge, an invitation to 10 Downing Street and a meeting with the First Minister.

from Pocket

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